NTSAD-DV is a non-profit voluntary health agency dedicated to the prevention and ultimate elimination of Tay-Sachs disease, Canavan disease and related lysosomal storage diseases (the allied diseases).

NTSAD-DV's goal is to make certain all adults who may be at-risk for the Tay-Sachs or Canavan gene learn about these diseases; have carrier screening available and accessible to them, and are fully prepared to make informed decisions for a healthy family.

NTSAD-DV strives to achieve this goal through: sponsoring and arranging community testings; programs of professional education for health care providers; aggressive public awareness and information campaigns; maintenance of a repository of specialized knowledge; serving as a referral network and resource center for affected families and couples at-risk; advocacy for prevention and research; and support for research.   More detail...