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URL Detail Submitted on: 2008-02-10 04:54:12 Submitted By: Kaushik Guha
The Strategies defined at the "Wingspread" meeting laid the foundation for today’s Association.

Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.

Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

Organize and/or participate in national and regional educational conferences.

Develop and promote the implementation of service programs that will be in the best interest of the affected population.

Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

Assist in the organization and development of local chapters.

Provide ongoing technical assistance to members and other interested groups or organizations.

Encourage adequate support for research activities leading to improved treatment and eventual cure.   More detail...

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